Programme Abstracts of the 3rd International Seminar featuring Getxo Zurekin: Building the narrative of a Compassionate Community

A Human Rights based approach to Palliative Care: Towards Solutions for Public Health Palliative Care

Abstract ID: 17

Getxo Zurekin : Building the narrative of a Compassionate Community


Topic: Compassionate Communities

Naomi Hasson, Maider Grajales, Itzier Grajales, Itziar Moreno, Gorka Espiau Idoyaga

Fundacion Doble Sonrisa, Agire Lehendakaria Center

Background: In 2017, the “Fundation X” launched ‘X Project’ as a compassionate community.


Objectives: To prototype a Social Innovation Platform with the aim of raising awareness and identifying integrated solutions to reshape the experience of palliative, end of life care and bereavement.


Design: Network mapping and delivering campaigns, training sessions for carers and the public on how to care in illness through to the end-of-life and support in bereavement. We designed collaboratively and prototyped a community listening platform focused on better understanding the social dynamics and perceptions that local citizens and institutions have on death, illness, and bereavement.


Method: This “open innovation process” includes a listening phase identifying the most significant narratives, collective interpretation sessions, combined with co-design sessions to identify integrated solutions and improvement opportunities through a co-design/co-production theoretical framework. This process has established a solid foundation for co-creating new integrated solutions, aligned with the socio cultural characteristics of the community.


Results: In the congress we will describe the methodology used for this research and how it is applicable to any area looking for change in integrated care in palliative care. We will also show how grassroots movements being aligned with local institutions can influence in policies thus improving the experience of death, dying and bereavement for all, understanding that to design new solutions, innovative community listening approaches need to be prototyped.


Conclusion: The project has given us real insight into what change the community feels is necessary to allow people to be where they want to be in times of illness and at the end of life.
The listening platform has allowed us to build a shared vision and a narrative of change influencing in public policies and understanding strengths, challenges, and priorities as well as to set up specific priorities and actions in the community.